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Wednesday, March 30, 2005

Just a few web sites specializing in neuroethics:

Neuroethics - Stanford Center for Biomedical Ethics (SCBE) - Stanford University School of Medicine
The Stanford Center for Biomedical Ethics (SCBE) was chosen to become one of the first Centers for Excellence in Ethical, Legal, and Social Implications (ELSI) of genetic research through funds made available by the National Human Genome Research Institute. In July 2004, the Center started a 5 - year mission devoted to the proactive identification and integration of ELSI considerations into the design and conduct of current and emerging genetic research. Under the leadership of Mildred Cho, PhD, Judy Illes, PhD, and Joachim Hallmayer, MD, one aspect of the center will focus on identifying the ethical and social issues arising from research on the genetic contributions to, and mechanisms of, behavior and neurogenetic conditions using autism as a model. The initial research questions will examine the social evolution of autism as a disease and identity by investigating the history of funding for autism research, the changes in diagnostic criteria, the effects of medicalization and commercialization and the impact of educational and parent advocacy forces. The ultimate goal will be to convene a multi-disciplinary Behavioral and Neurogenetics Working Group that will draw from neuroethics, psychiatry, sociology, anthropology, epidemiology, pharmacogenetics, philosophy, law, health policy and others.

Neuroethics at U Penn
Neuroethics.upenn.edu is a source of information on neuroethics, provided by the Center for Cognitive Neuroscience at the University of Pennsylvania.

Here you will find:
* summaries of neuroethical issues prepared expressly for this website
* pointers to the literature with links to downloadable articles or article abstracts
* exclusive interviews with leaders in the field, focusing on their particular areas of expertise
* links to other relevant websites on neuroethics, neuroscience, and policy
other sources of education and amusement, including neuroethics course syllabi, a neuroethics conference calendar, and a listing of novels and films that deal with neuroethical issues.

Our goal is to inform students and professionals in bioethics, neuroscience, medicine, business, education and law, and all other interested readers who surf our way.
Neuroethics and Law Blog
The Neuroethics and Law Blog is an interdisciplinary forum for legal and ethical issues related to the brain and cognition. It is meant to be of interest to bioethicists, legal academics, lawyers, neuroscientists, neurologists, cognitive scientists, psychologists, psychiatrists, philosophers, criminologists, behavioral economists, and others.

The Center for Cognitive Liberty & Ethics
The Center for Cognitive Liberty & Ethics (CCLE) is a network of scholars elaborating the law, policy and ethics of freedom of thought. Our mission is to develop social policies that will preserve and enhance freedom of thought into the 21st century.

Corante: Brain Waves
Zack Lynch, managing director of NeuroInsights, is an economic and social forecaster advising global organizations on the impact of neurotechnology on business, government and society. He serves on the advisory boards of the Center for Cognitive Liberty & Ethics, Global Neuroscience Initiative, and SocialText, a social software company. He is currently finishing his book on Neurosociety: How Brain Science Will Shape the Future of Business, Politics and Culture.

Neuroethics: The Neuroscience Revolution, Ethics, and the Law (Henry T. Greely)
Neuroscience is rapidly increasing our knowledge of the functioning, and malfunctioning, of that intricate three-pound organ, the human brain. When science expands our understanding of something so central to human existence, these advances will necessarily cause changes in both our society and its laws. This paper seeks to forecast and explore the social and legal changes that neuroscience might bring in four areas: prediction, litigation, confidentiality and privacy, and patents. It complements the paper in this volume written by Professor Stephen Morse, which covers issues of personhood and responsibility, informed consent, the reform of existing legal doctrines, enhancement of normal brain functions, and the admissibility of neuroscience evidence.

President's [conservative] Council on Bioethics: Neuroethics Index

Comments

Dear Sir,
Why should something like brain wave activity be a criteria for removing life support for any human being? Should it be several criterian for the decision to stop the feeding and hydration of a human being who is in such a physical state they cannot do normal and basic task for their own survival? What happens when one judicial decides against the advice of the medical "experts" in that region of the county (blue or red states) and uses the "benches" for the idea of who should be shut off from live sustaining nutrition?
Should all elderly patient be cut off from "above and beyond" efforts due to the high cost of medical care in the last several months of life? These costs in the last several months of life are often higher that for the 7 or 8 decades that proceeded their soon to come passing. After all, we could keep them alive another year or two if we put these high cost assets into these people rather than provide servicea many other "healthier" persons who perhaps can still active lives and give something back to the community. Do we let Medicare and Medicaid drive these decisions?
Yes, this does sound like the first paragraph implies not to interfere with stopping the feeding of a person who is unable to help themself with simple tasks such as eating and drinking. However, if we start to make decisions based solely of the ability to take care of ourself independent of other criteria, all of us would never have a chance to grow up because infants are in this category. True, this is an extreme example. Where does it stop is the question.
The news recently made most of us give pause to our own decision for the end of our life. This case was made on a decision that7 years ago, after the fact and on hear say testimony. This is unsatisfactory. When no clear statement of intend is available life should be preserved, erring on the side of life.
I do not believe that life should be maintain AT ANY COST for reasons mentioned above. I held my mother as she died in a Hospice environment. It was a beautiful passing because she had it done HER WAY. Her wishes were known and carried out to the last detail. I know she would not have had it any other way.
We cannot say that in many of these cases, whether they garner national attention or not. I believe as a nation we do a pretty good job, but this task has much to be improved on. Simply stated, if there is doubt (and there was great doubt in this last national case), the decision MUST be on the side of life. Especially when the only care that was given as a feeding tube. However, when the wishes are known and someone's choice is to pass from this life under their own terms, we MUST honor those wishes as best the medical community can.
This thought is only the thoughts of a country boy that has gone from making villages disappear just by giving a command on the radio, to starting a new career at age 51 as a Pharmacist, hoping to become part of the team that will let people pass with digity, not controversy. All this could have been avoided by erring towards life. Life is what that oath is all about Doctors take when they are given the right to practice.
Thank you for your time. I know these questions are not easily answered by anyone who gives them the important thought they demand.

Respectfully Submitted,

George F. Nolte

Captain United States Marine Corp
Captain Delta Airlines, Inc.
Student, Appalachia School of Pharmacy

Posted by George F. Nolte at Monday, April 04, 2005 00:18:21

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